It’s an incredible feeling to meet others living with Chronic Granulomatous Disease (CGD). Dealing with such a rare primary immunodeficiency can feel isolating at times, and connecting with fellow individuals and families in our community with whom we can share stories and information is invaluable.
The good news is that this year the Immune Deficiency Foundation (IDF) is hosting two IDF Retreats! Individuals, parents, siblings, children and partners are encouraged to attend! The retreats will take place in two amazing locations: Boston, June 17-19, 2016 and Salt Lake City, August 19-21, 2016.
IDF Retreats are weekend gatherings are designed to help every attendee learn the latest news and information from top specialists, make new friends, and have some fun! We’re excited to announce that this year both events will feature Special CGD Programs.
Special CGD Programs Agenda
Sunday, 9:00 – 12:00
This session will include a presentation and Q & A session with a healthcare professional. A panel of individuals diagnosed with CGD and caregivers will share their stories about living life to the fullest. The networking time will allow participants, presenters and panel members to interact with each other and receive valuable information and support.
9:00 Welcome & Introductions
9:15 Overview & Treatment Options for CGD: Daniel Ambruso, MD, Children’s Hospital Colorado
10:15 Panel Discussion & Networking
IDF is pleased to offer scholarships for individuals and families with CGD attending IDF Retreats, including retreat registration, hotel room and limited travel. Please register as soon as possible to take advantage of the limited scholarship funding that is available.
To learn more and to register for the Boston retreat, please click here. Deadline to register is May 9.
To learn more and to register for the Salt Lake City retreat, please click here. Deadline to register is July 11.
IDF Retreats Special CGD Programs are sponsored by Horizon Pharma.
IDF Retreats are supported by charitable donations from Baxalta Incorporated, CSL Behring, Grifols, Horizon Pharma, IgG America\ASD Healthcare\US Bioservices, and Sigma-Tau Pharmaceuticals.