Living with CGD – The IDF Resource for the Chronic Granulomatous Disease Community
The Immune Deficiency Foundation (IDF) is proud to provide this site for those living with Chronic Granulomatous Disease, featuring the latest information and educational resources.
Make Connections on IDF Friends
IDF Friends, www.idffriends.org, is a private social network and discussion forum only for patients and family members living with primary immunodeficiency. Click here to create an account and connect with others in the CGD Group!
Have a Question? Ask IDF!
If you have a question, Ask IDF! You can ask questions or request additional information. From learning more about the diagnosis and treatment of CGD to helping you locate a specialist in your area, IDF is here to help! Click here to Ask IDF!
Learn about Treatments for CGD
Today CGD is a condition that can be effectively managed. The key is early diagnosis and treatment with appropriate prophylaxis, and preventing infections by avoiding materials and activities that expose patients to harmful levels of bacteria and fungi. Click here to learn more.
IDF Reel Stories – Hear from Patients and Families Living with CGD
IDF Reel Stories is a patient-generated video community designed to encourage and empower fellow patients and their loved ones. Below are videos featuring those living with Chronic Granulomatous Disease (CGD). Visit our IDF Reel Stories of CGD page to see more CGD-specific videos!
Kathryn & Cameron
IDF ePHR & PI CONNECT
The IDF ePHR is the electronic personal health record designed for the primary immunodeficiency (PI) community. Featuring innovative technology, IDF ePHR uses an advanced online system to transform how patients with PI manage their health. An added benefit for users of IDF ePHR is the opportunity to be a part of research by consenting into PI CONNECT, the new IDF Patient-Powered Research Network. Click here for more information about IDF ePHR and PI CONNECT.