Special CGD Sessions offered at IDF 2019 National Conference

IDF 2019 National Conference
Join the Immune Deficiency Foundation (IDF) at our biennial National Conference for people with primary immunodeficiencies (PI) and their families—offering strategies for coping with PI, providing opportunities to meet other facing similar journeys, and presenting the latest science-based information about PI diagnoses and treatments. The 2019 National Conference will be held in National Harbor, MD, just outside of Washington DC on June 20-22.

Special CGD Symposium
On Friday and Saturday, IDF will offer a Special Chronic Granulomatous Disease (CGD) Symposium for individuals and families living with CGD. The symposium will include presentations from experts in the field regarding CGD. This is a perfect opportunity to obtain answers to your questions from the experts and network with other individuals and families living with CGD. In addition the CGD symposium, participants can attend all other general sessions, including our Meet-and-Greet reception and the IDF Zebra Gala. Even if you have attended an IDF event in the past, there is always something new to learn!

Topics
Introduction to CGD
Clinical Management of CGD
CGD Myth Buster
Lung Inflammation
Gastrointestinal Inflammation
Treatments

Presenters

  • Hey Jin Chong, MD, PhD, Children’s Hospital of Pittsburg
  • Caroline Kuo, MD, UCLA Medical Center
  • Jennifer Leiding, MD, University of South Florida, All Children’s Hospital
  • Harry Malech, MD, National Institute of Allergy and Infectious Disease (NIH)
  • Rebecca Marsh, MD, Cincinnati Children’s Hospital
  • Kenneth Olivier, MD MPH, National Heart, Lung, and Blood Institute (NIH)
  • Christa Zerbe, MD, National Institute of Allergy and Infectious Disease (NIH)

CGD Scholarships

  • Accommodation scholarships. Accommodation scholarships are available for individuals and families with CGD. To apply, you must be diagnosed or have an immediate family member diagnosed with CGD and attend the Special CGD Symposium. Scholarship includes Thursday – Saturday (three nights) hotel accommodations. To apply, go to: https://primaryimmune.org/idf-2019-national-conference-scholarship.
  • Travel scholarships. Travel assistance is also available to CGD patients and their families. For information on travel assistance to the IDF National Conference, please call the National Organization for Rare Disorders at 800-999-6673 and choose option 3 (Travel and Lodging Department). Please note, proof of diagnosis will be requested.

Conference Registration. Easy, online registration is available at https://primaryimmune.org/education-and-events/idf-national-conference. Early registration rates are available until Wednesday, May 1.

Frequently Asked Questions. Check out some frequently asked questions about the conference at https://primaryimmune.org/education-and-events-idf-national-conference/frequently-asked-questions-idf-2019-national-conference

IDF Youth & Teen Program. Special youth programming is available during the Symposium hours on Friday and Saturday. Preregistration is required. There is no onsite registration available for the Youth & Teen Program. You will be able to enroll during the registration process.

 

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