IDF wants to help young adults manage living with Chronic Granulomatous Disease (CGD), including your health, insurance, education and relationships. You get support from your family and friends, but IDF can provide you with advice and resources to help you cope with a wide variety of issues related to having CGD.
IDF Friends is a social networking site designed specifically for individuals with all types of PI. You can connect with other young people who understand what it is like to live with CGD: www.idffriends.org.
IDF Young Adult Weekends, which are held throughout the year in various cities across the country, are a chance for you to talk with medical experts and meet other young adults who understand what it’s like to live with PI. You’ll get valuable information on a wide variety of topics:
- Tips to Manage Your Health
- Advice about Friends, Dating and More
- Being Independent
- Your Education and Career
- Navigating Health Insurance
Helpful information for both young adults and parents can be found in the young adult section of the IDF website, www.primaryimmune.org/young-adults and in the Immune Deficiency Foundation Patient & Family Handbook for Primary Immunodeficiency Diseases chapter titled “Young Adults Living with Primary Immunodeficiency Diseases.”
To learn more about programs and resources for young adults, contact IDF via Ask IDF or 800-296-4433.