Making connections with others affected by Chronic Granulomatous Disease (CGD) can be life-changing. The Immune Deficiency Foundation (IDF) understands the importance of meeting others who understand your journey and learning more about the disorder and treatment. To bring together the CGD community, IDF will be offering Special CGD Sessions at the IDF Retreats 2018.
IDF Retreats offer a balanced weekend of activities designed to help every attendee learn the latest news and information about primary immunodeficiency diseases (PI), including CGD, from top specialists and life management experts. Retreat activities feature a blend of encouragement, education and entertainment!
IDF Retreats 2018
July 20-22, 2018
The Westin Cleveland Downtown
If you are an individual or family with Chronic Granulomatous Disease (CGD) and you’d like to register for the Cleveland CGD Session, click here to e-mail us.
St. Augustine, FL
August 10-12, 2018
World Golf Village Renaissance St. Augustine Resort
If you are an individual or family with Chronic Granulomatous Disease (CGD) and you’d like to register for the St. Augustine CGD Session, click here to e-mail us.
Special CGD Sessions Highlights
Retreat attendees who register for the Special CGD Sessions can look forward to:
- Empowering educational presentations about CGD, managing CGD, treatment, carrier concerns and more.
- Interactive Q&A with healthcare professionals
- Valuable community panel featuring people affected by CGD sharing their stories
- Fun opportunities to socialize with others living with CGD
- Wonderful camaraderie with the entire PI community
IDF Retreats 2018 – CGD Session Agenda*
4:00 PM Hotel Check-in & Registration
7:00 PM Welcome & IDF Update
8:00 PM Dessert Reception
8:00 AM Breakfast
9:00 AM Good Morning
9:05 AM Primary Immunodeficiency: Where We Are & Where We Are Going
9:35 AM General Care for Individuals Diagnosed with a Primary Immunodeficiency
10:30 AM – 11:00 AM CGD Overview
11:00 AM – 11:45 AM How Do We Manage CGD Medically?
11:45 AM – 12:15 PM Managing GI Issues
12:15 PM – 12:45 PM Q&A
9:00 AM – 10:00 AM Living with CGD
- IDF Resources
- General Care – Caring for Yourself
- Genetics and Carrier Issues
10:00 AM – 10:30 AM Q&A
10:30 AM – 10:45 AM Break
10:45 AM – 12:00 PM Community Panel: Ages and Stages
12:00 PM Retreat Ends
IDF is pleased to offer scholarships for individuals and families with CGD attending IDF Retreats that includes retreat registration, hotel room and limited travel assistance. Please register as soon as possible to take advantage of the scholarship funding that is available.
Youth Program, Requires Separate Registration
During IDF Retreats, we offer special programming for youth and teens, designed with age-appropriate educational and fun activities for ages 6 months to 18 years. Access to the Youth Program is included, but it does require a separate registration. If you haven’t already registered your children for the Youth Program, please click here.
Questions? Call 800-296-4433, or click here to e-mail IDF.
Special CGD Sessions at the IDF Retreats are supported by a charitable donation from Horizon Pharma.
IDF Retreats 2018 are supported by CSL Behring, Grifols, Shire, Horizon Pharma, Octapharma, and Leadiant Biosciences.
*Presenters and schedule are subject to change.
This content should not be used as a substitute for professional medical advice. In all cases, patients and caregivers should consult their healthcare providers. Each patient’s condition and treatment are unique. The benefits and risks of any treatment should be discussed with the patient’s provider.