Because it is such a rare condition, individuals living with Chronic Granulomatous Disease (CGD) can feel alone in the world at times. Meeting other individuals who live with CGD is a way to both gather knowledge and acquire an important sense of connection with others who share your experience.
IDF can put you in touch with another patient through its peer support program and can provide information about regular educational meeting opportunities that occur at various regional and national locations. Click here to request IDF Peer Support.
IDF has developed two social networks dedicated to those living with all types of primary immunodeficiency diseases (PI). These online communities give those affected by PI the opportunity to offer and receive peer support, ask questions, make suggestions, share their stories, and connect with others.
- IDF Friends
www.idffriends.org, is our social network created exclusively for adult patients and family members. You can connect with others in the CGD group. Create an account and start connect with others. Click here to visit IDF Friends.
Sign up and stay informed! Being a part of IDF has wonderful benefits for you. We will keep you informed of the latest news regarding treatment, education, recalls, programs and other timely issues for those living with CGD and other types of PI, via the Primary Immune Tribune monthly e-newsletter, and the IDF ADVOCATE printed newsletter. Click here to Get Connected.
You may have specific questions or simply want more information about IDF programs and resources. We welcome your inquiries. Click here to contact IDF through the Ask IDF form.