• Sometimes You Sail Through…

    By Felicia Morton No one goes through life unscathed, but some people manage to sail through incredible storms and live to tell the tale. Here is ours… At three months old, my son, Sebastian, began to have a series of strange illnesses that sent us into a maze of confused doctors and specialists, until we […]

  • Journal Article Regarding Management of CGD Published

    In the November / December 2016 edition of The Journal of Allergy and Clinical Immunology: In Practice, an article discusses the management of Chronic Granulomatous Disease (CGD): “A Comprehensive Approach to the Management of Children and Adults with Chronic Granulomatous Disease.” In this article, the authors discuss the current approach to the management of CGD […]

  • Family Documents Transplant Journey through Insightful Blog

    Sebastian, a 4 year-old diagnosed with Chronic Granulomatous Disease (CGD) when he was just a few months old, recently received a bone marrow transplant to effectively cure his condition. His parents Miguel Sancho and Felicia Morton, who also have a 7-year-old daughter Lydia, are documenting the family’s journey with honest, insightful blog posts at […]

  • Skin Issues and Infections in Patients with CGD

    Recently, we asked the Chronic Granulomatous Disease (CGD) community to share their experiences with skin issues or infections, and we received many responses. Patients and caregivers described their battles managing mild to severe acne, boils, lupus-related rashes, and photosensitivity. Out of all the patients who responded, the most common response concerned acne. For those with severe, cystic […]