“Connecting the dots to a Chronic Granulomatous Disease (CGD) diagnosis can be challenging for the layperson,” explains Tangela Bass. “Few people know about rare diseases, including many physicians.” It’s only in hindsight that Tangela and her husband, Eric, can see the clues leading to their son’s diagnosis. In 2005 their son, Aaron was unknowingly born […]
Medical travel can be daunting and expensive. Miracle Flights may be the answer you’re looking for. Miracle Flights, through a Horizon Pharma supported program, provides children with CGD and their families free flights to distant, specialized care. This program is designed to improve access to health care by providing free medical air transportation to low-middle […]
It was the best of times, it was the worst of times. Paraphrasing this iconic statement is how Carla Dean of Titusville, Florida describes her journey with Chronic Granulomatous Disease (CGD) and her two childhood lives—one at home and one at the National Institutes of Health (NIH). By 9-years-old, Carla had already lost one infant […]