August 2018

Monthly Archives

  • Chronic Granulomatous Disease (CGD) Emergency Relief Fund from NORD

    There are typical costs associated with having a disease, such as equipment and prescription drugs, but the costs are much higher for patients with rare diseases. Managing Chronic Granulomatous Disease (CGD) can place a significant financial burden on families and add up rapidly. The National Organization for Rare Disorders (NORD), a patient advocacy organization for […]

  • The Universal Language of Song

    Every culture enjoys song and music. Songs serve many different purposes: psych up dance tunes, soothing lullabies and expressions of love. Ultimately, music conveys one’s self to ourselves and to others. The Sing Me A Story Foundation uses this power of music to bring children’s stories to life through original song. Listen to 9-year old Ja’cori’s […]