June 2018

Monthly Archives

  • Chronic Granulomatous Disease: A Saga of Discovery and Understanding

    The Journal of the Pediatric Infectious Diseases Society recently published a supplement entitled “Chronic Granulomatous Disease: A Saga of Discovery and Understanding.” The supplement includes multiple articles regarding Chronic Granulomatous Disease (CGD). “From Fatal Granulomatous Disease to Chronic Granulomatous Disease” Paul G Quie, MD Journal of the Pediatric Infectious Diseases Society, Volume 7, Issue suppl_1, 9 […]

  • NIH Is Recruiting for Study That Gets “to the Heart” of Being a Carrier of CGD

    Most mothers in the Chronic Granulomatous Disease (CGD) community are aware of the health implications of being an X-linked carrier of CGD. Now for the good news: there may be some protection against atherosclerosis, a serious disease that causes plaque to build up inside arteries, which can lead to heart attack and stroke. If you’re […]

  • CGD & School Webinar

    If you are a parent of a school-age child living with Chronic Granulomatous Disease (CGD),  you may want to learn more about what you and your child’s school can do to make sure your son or daughter has a great school year. Horizon Pharma invites the CGD community to attend its CGD Connections™ CGD & School […]

  • IDF Introduces New Guide to Hematopoietic Stem Cell Transplantation

    Helping Parents and Patients Make Decisions Whether you are recently facing a diagnosis of Chronic Granulomatous Disease (CGD) or been living with CGD for years, you have likely carefully considered the treatment options with your healthcare provider. Hematopoietic stem cell transplantation (HSCT) can be a consideration for treating CGD, depending on the assessment of an […]