The Immune Deficiency Foundation (IDF) is excited to announce the launch of its new official IDF Facebook Group for People Living with Chronic Granulomatous Disease (CGD). As a “closed group,” the IDF’s objective is to create a safe place where people with CGD and family members can ask questions as well as share insights and experiences about living with CGD.
IDF invites you to post news, research, and articles about CGD that you find interesting. This group is designed for people with CGD to come together and share their stories, discuss issues, and post photos. Please share your updates and think of this as your group!
Meanwhile, we know that not every day can be a good one with CGD. For moments when you’re feeling isolated or that no one understands what you’re going through, the group can help you connect with others who have been there. You don’t have to go through it alone.
The Official IDF Facebook Group for People Living with CGD will be moderated to ensure that only individuals who have been diagnosed with CGD and their immediate family members will be approved to join. Promotional content of any kind will not be allowed. While IDF has designed the group to be a private, supportive online community to discuss CGD, the information contained in this group is intended to provide broad consumer understanding of primary immunodeficiency diseases. It should not be considered complete and should not be used in place of a visit or consultation with a physician or healthcare provider.
Are you a “connector” in the CGD community? IDF is currently looking for a volunteer moderator to help manage the group. It’s a great way to keep in touch with parents or people with CGD that you already know or to make new friends. In this role, IDF will depend on you to ensure communication is helpful, respectful, and private. Click here to e-mail IDF stating your interest, and a representative of IDF will be in touch.