No family living with Chronic Granulomatous Disease (CGD) should ever feel that they are facing this disease alone. By sharing what you’ve learned from your experiences, you can help strengthen the community and support those who are struggling on their journey.
If you are interested in sharing your story and helping others, Horizon Pharma will be hosting a 2-hour virtual workgroup the week of October 21, and is seeking volunteers to participate in helping develop educational resources for the community. For this virtual workgroup, Horizon is inviting parents of young children (under the age of 12) who are medically managing their CGD to share their insights and experience. Participants will be compensated fairly for their time.
If you are medically managing CGD for a child under the age of 12 and are interested in learning more, click here to email Gail Moore from Horizon Pharma for additional details.