The Immune Deficiency Foundation (IDF) always keeps the youngest members of the community in mind when developing programs and resources. Youth Programs are offered at every IDF National Conference, Retreat and Family Conference Day. These kid-friendly gatherings offer education and fun for children, up to age 18, who are diagnosed with a primary immunodeficiency disease (PI), including Chronic Granulomatous Disease (CGD), or have a family member with the condition. While parents are attending educational sessions, their children benefit from programs developed especially for them, helping them understand PI and connect with others going through similar circumstances.
For the next program, click here to view the IDF Calendar of Events.
IDF publications are valuable resources to help children and parents learn about living with PI. The IDF Patient & Family Handbook for Primary Immunodeficiency Diseases includes chapters devoted to each life stage, from infants to adults, complete with advice for parents of children with PI, including how to help them understand their disease, normalize their life and coordinate their healthcare. IDF’s popular Our Immune System children’s storybook, which has been translated into many different languages, educates children about PI through illustrations as the characters explain how the immune system works and describe treatments.
The IDF Arcade contains games inspired by the characters from Our Immune System. One of the most popular games from the IDF Arcade, Whack-A-Germ, has an app. In the Whack-A-Germ app, players get the satisfaction of whacking the germ while watching out for the friendly T-cells and phagocytes. With colorful graphics and fun music, this app is great for little zebras. You can download the Whack-A-Germ app to your smartphone or tablet. It is available for free from Google play (Android) and the iTunes store (iOS). Search for “IDF Game.”
Click here for more information about the IDF Youth Program, publications and Whack-A-Germ app.
For more information about programs and resources for parents and children, contact IDF via Ask IDF or 800-296-4433.